Books

How to Live Well with Dementia - Soft cover book

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Expert Help for People Living with Dementia and their Family, Friends, and Care Partners.

By Anthea InnesMegan E. O’ConnellCarmel GeogheganPhyllis Fehr

How to Live Well with Dementia: Expert Help for People Living with Dementia and their Family, Friends, and Care Partners provides an array of essential guidance about the different aspects of dementia for all whose lives are touched by dementia, including people living with dementia and their support network.

Following an effective Q&A framework, this book offers valuable, easy-to-navigate guidance on the burning questions that those living with a dementia diagnosis and their carer/supporter need to know. Questions addressed include ‘How can I adjust to life with the diagnosis?’, ‘How can I plan for the future?’, and ‘How can we support our loved ones living with dementia?’. It provides expert explanations about changes in the brain and the various causes and types of dementia, as well as support on how to adjust to living with a diagnosis. It also offers practical information about care planning and advanced directives, maintaining health and social connections, accessing appropriate community care, and supporting medical and hospital care. It concludes with important self-care information for care/support partners.

Written jointly by academic experts and experts through lived experience, this book is indispensable for people living with dementia, care partners, and anyone wanting to understand more about the condition, as well as health and social care professionals and students of health and social care.

 

Introduction

Part 1

Chapter 1. Does something feel different? Is it time to seek a diagnosis?
Chapter 2. How to adjust to life with the diagnosis?
Chapter 3. Planning for the future – what about advance care directives and care planning?

Part 2

Chapter 4. How can we promote and maintain social health and wellbeing when living with dementia?
Chapter 5. What care and support in the community might be accessed?
Chapter 6. How do I supporting the person living with dementia with hospital appointments and admissions?

Part 3

Chapter 7. How do we plan a move to long stay care?
Chapter 8. How do we deal with end of life and palliative care?
Chapter 9. How is it possible to balance the needs of the care partners and supporters? Looking after yourself
Conclusion

 

Biography

Anthea Innes moved from Scotland to Canada in 2022, where she is a professor of health, ageing, and society; Gilbrea research chair in ageing and mental health; and director of the Gilbrea Centre for Studies in Aging at McMaster University. She has conducted social research on dementia for nearly 30 years.

Megan E. O’Connell is a registered doctoral psychologist and a professor of psychology at the University of Saskatchewan, Saskatchewan, Canada. She leads the clinical neuropsychology team in the diagnostic Rural and Remote Memory Clinic, provides care partner support, and researches issues related to dementia care.

Carmel Geoghegan is based in Ireland and was primary carer for her mother who lived with mixed dementia. She has remained an advocate and supporter of campaigns that keep the spotlight on dementia and end-of-life care. Her priority is the development of practices and policies that respect people living with a dementia diagnosis, particularly in rural areas.

Phyllis Fehr is a person living with dementia in Canada. She is currently a patient advisory to the Alzheimer’s Board for Canada. She provides local leadership to the Empowering Dementia-Friendly Communities Hamilton, Haldimand project, and has written and spoken about her experiences nationally and internationally.

Reviews

“For those facing dementia, whether personally or as a caregiver, this book offers practical advice and heartfelt encouragement.”

Christopher Barry, CEO, Alzheimer Society of Canada. 

“This excellent book helps us all to become proactive instead of just reactive, which will improve the lives of everyone who lives with or is affected by dementia. Finding out as much information as you can about living with dementia, then changing your life as you learn, helps make the symptoms and deficits less challenging to live with for yourself and those around you. This is a must-have book for those diagnosed, their families, and everyone involved in their care and support. This is a guide that I wish I had when first diagnosed. It starts at the beginning and accompanies you alongside your life with dementia, until the final chapter where it continues to support those left behind. All the information you need is in one place, written by experts, including those who have been directly affected- the experts by experience.”

Chris Roberts, Chair of the European Working Group of People with Dementia (EWGPWD) and Ambassador for Alzheimer’s Society UK.

Nursing & Health Dementia Care

Ideal for quick reference, this pocket-sized guide puts all the crucial information on caring for patients with dementia at your fingertips.

Evidence-based and fully updated for this second edition, it includes all you need to know on: person-centred dementia care; dementia-friendly environments; working with families as partners; communication and managing behaviour; pain assessment; nutrition and medication; advanced care plans; and much more …

All health and social care professionals involved in the care of dementia patients will find this book a valuable resource, while it is an essential guide for students on placement in this area.

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Group Activities with Older Adults

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If you have responsibility for providing activities for older adults and you aren’t sure whether what you are providing is effective, or you have exhausted all your own activity ideas then this book is for you. This clear and easy-to-use resource provides the tools you require to develop and implement a range of activities that meet the needs of your group. Structured around the ten areas of activity need – cognitive, creative, cultural, educational/employment, emotional, physical, self-esteem, sensory, social and spiritual – this book is a resource of activity ideas with hints, tips and suggestions for successful planning and delivery, and guidance on recording and evaluating activity programmes. It explores some of the adaptations required to meet the needs of younger clients, those with dementia, and those with communication difficulties. It is an ideal resource for anyone working with elderly people wanting to improve on an existing activity programme, or wishing to commence one.

Memory Games for Groups

This wonderfully practical handbook features 80 adaptable and photocopiable games for uses with older people, as well as individuals or groups of all ages. The games can be used as part of a social activities programme, specifically for reminiscence purposes, to help keep people orientated to the world around them, to exercise memory skills or as the prelude to discussion, so that individuals can share difficulties and explore methods of aiding memory.

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Take Note - 100 Everyday musical ideas for Carers to use with Older People

Music is increasingly recognised as being an activity that can be of enormous benefit to those living with dementia. Take Note will help anyone working with older people to find ways of using music effectively, regardless of their musical training or ability.

Presented on easy-to-access cards, there are 100 different ideas for using music, each one tried and tested by the authors. Cards include ideas for:

  • Encouraging participants to listen to music and join in
  • Using music to help achieve particular effects, such as wellbeing and the relief of anxiety, depression and agitation
  • Working with individuals and groups
  • Enhancing social engagement
  • Improving memory and communication.

The resource is accompanied by a website that illustrates the ideas set out on the cards with videos and musical materials. Take Note is a useful aid for caregivers, music practitioners and therapists working with older people, whether in a care home, a day care centre or in a private home. The cards are also a helpful resource for family members of those with dementia

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